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Managing The Stress ~ Making The Decisions ~ Discovering The Meaning |
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Caregiving |
Solutions To Your Caregiving Situations Throughout Your Caregiving Years |
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2003 Family Caregiver Survey Results Your Experiences in Your Words
If you could make any changes in your community that would help caregivers, what changes would they be?
Get more awareness in my community, some exchange of services among caregivers. Most importantly, change the way that nursing homes and day programs are set up so that certain services are provided there, so that you can actually use them. Otherwise, you are clearly neglecting your care recipient and that is a shame. Many are in that position, and feel bad.
Money: If they had more money we could afford more help.
More visible resources for caregivers.
More respite care that's affordable!
More support groups available, and provide competent care for the person so the caregiver could get to these meetings, provide cancer survivors to come into the homes to help the patients coping with cancer and chemo and all of that. No one would come. The American Cancer Society in our area told me "they don't mix cancers," so they were waiting to find a pancreatic cancer survivor, which really does not exist. That would have helped so much if a cancer survivor could have come to the house regularly to talk with my mom. It would have given her hope. She was too sick to go out for help and we couldn't get in to the house what she needed.
Add support groups, more affordable home health aides.
I would have a resource person available to answer questions and help solve problems. I would have a central registry for volunteers and paid aides etc. so that finding help wouldn't be so hit or miss. I would love to have adult day care available.
More active support groups.
More services for the elderly, a newcomer packet for elderly arriving from another location. More affordable, gated communities.
More awareness and compassion for caregivers.
More access to respite care time; day care centers. More options and choices to help the caregiver and recipient; shouldn’t have to leave the county to receive good care!
More adult day care.
The state should provide some aid for caregivers who live with and provide care.
More transportation for wheelchairs.
Someone for my mother to communicate with on regular basis.
More local support groups; help in locating services for them.
Senior transportation--a cab service for errands.
Benefits for care workers; exercise options/health food coop/restaurant.
Have a local pool of volunteer caregivers who could be available with 24-hours notice.
Government support for caregivers; a nursing home would cost the government a lot of money each month; could benefit from a break on income tax.
A volunteer program for respite care.
Community support and information; more workshops/seminars; respite caregivers.
Support full-time caregivers with more respite options; future employment training; tax relief.
Senior citizens building for events and socializing.
Support group; taxi service.
Keep them educated/informed on new issues, concerns of caregiving.
More care coordination for elders.
More government subsidies for home health care.
Travel to doctors’ appointments.
Community-based alternative caregiver program expedited (current wait: 2 years).
Grant programs to help with costs. What advice would you give to a new caregiver? What advice would you give to a health care professional who helps family caregivers? What has been your greatest lesson learned as a result of your caregiving experience? |
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